I’m sick, I’m tired, and now (drum roll please)…
There comes a time in your life when you think of others before yourself. This is one of those moments. Having a child with autism has put a lot of my dreams on hold. I quit teaching to focus on giving my son everything he needed and deserved. The shopping trips, dinners out, vacations…they all disappeared. Life as I knew it was enthusiastically replaced with stool tests, supplements, and ABA workshops. My desire to have another child was also placed on the backburner. As an only child myself, I desperately wanted to give my son the gift of a sibling. For so many reasons, really. For companionship, fighting over Lincoln logs, or even knowing that someone would “have your back” when you went to school with a bad perm or new unflattering glasses. And, for me, it was difficult (if not impossible) to blame my actions on my cats. Now, a sibling…that would’ve been promising. Shouldn’t everyone experience this joy?
Well, God intervened and decided that it was time. Though the circumstances aren’t to my liking, I’m pregnant. Being a pessimistic person by nature, random thoughts have popped in my head (with the same response as I’d give a giant bird shitting atop me). These crappy thoughts have ranged from concerns about finances and time management to the health of my baby.
I think you have to go through something before you can truly understand it. I’ve never given too much thought to siblings of autistic children. Now that I’m going to have one, I think about it all the time. How have children who’ve come before my unborn baby done with the difficulties of autism? I wonder how it’s affected them in the long run. Will they be the caregivers of our autistic children when we’re dead and gone? How can I ensure that my new baby will be healthy and not succumb to autism? Of course, I have my opinions. Avoiding vaccinations will be my first line of defense. The government and pharmaceutical companies may have taken my first child, but I’ll be damned if they get another one.
As my head fills with questions about the future, I periodically snap back to reality (with more force than the time I rear-ended a pick-up truck while throwing away a toothpick). I think about the things that I know will happen. Yes, ladies and gentlemen, I’m already experiencing food cravings. No pregnancy is complete without a 3 a.m. snack attack of waffles and peanut butter. I’ve been hand selecting my friends who’ve been on Santa’s “Nice List” to accompany me through the hell of delivery. I’m not-so-eagerly awaiting what can only be thought of as karma-like morning sickness and stretch marks.
Maybe I would’ve waited a few more years. Perhaps the timing is bad. But really, in the end, it’s not about me. It’s about what’s best for my son and baby-to-be. In the next eight months (God, that sounds like forever), I’ll be exploring ways to prevent autism and sharing my reckless thoughts, (possibly) unwanted opinions, and lots of good information. The least I can do is portray my story to the world. After all, I know my child won’t be the last baby born into an autism family.
All I know is that this little lady (I have a feeling it’s a girl) is going to be as controversial as I am. A handful, indeed. Already, she’s indirectly said, “Get ready world, here I come! And what are YOU going to do about it, Mom?” So, what am I going to do about it? Take one step at a time, I suppose. Pray like mad for the health of my child. Try my hardest to deliver and raise a healthy child so that my son will have the gift that I never had. It may not be my timing, but look out world, she’s (or perhaps he’s) on the way.
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Crystal - Wow!! I say congrats to you and your family! We tempted fate twice after our first son was born and diagnosed. We have 2 beautiful additions to our family since him...one of which is another autistic son; the other a typical daughter. I so COMPLETELY understand your multitude of questions and concerns. I read books about siblings with autism, but as you said, to live it is the only way to know it. Just remember you are an awesome Mom and advocate for Hayden, and you will no doubt successfully do the same for his sister (or lil bro)! I look forward to riding along with you on this adventurous rollercoaster ride!! Best Wishes!!
ReplyDeleteThanks Jackie! I'm going to email you on facebook about some questions I have. :)
ReplyDeleteCongratulations, I have been lurking your blog for awhile. I dont have experience with a younger sibling thing, my non affected children are older.
ReplyDeleteThey have been in the battle to save our youngest from the beginning. Autism changed their lives as well. They are fabulous siblings and I am proud of the adults they have become. Siblings rise up, whether they are older or younger.
Please be careful about ultrasound as well. I don't know much but I know there are people who think multiple ultra sounds may be involved with Autism as well.
Dont worry about the timing of the pregnancy or your finances! Having another child will never get cheaper!
Crystal, I think a new baby is exactly what you need. God's timing is perfect. Congrats!!!
ReplyDeleteDana
crystal, wow. I am in the "oh no, we're not having another one bucket" since ds's dx. So i definately know where your thought pattern is. Good luck. and congratulations.
ReplyDeleteThanks guys! I'll keep you all updated on the whole journey. :)
ReplyDeleteCongrats. Maybe you should change title to Super Bitch during the morning sickness months.
ReplyDeleteBrad
lol. Thanks...maybe even Autism's Morning Sick Bitch. :)
ReplyDeleteThis is a good thing!! Congrats!!
ReplyDeleteClara was the best thing to happen to this family and she was the best thing for Ruby! Your first year will be a bit...ahem....hard. But it's so worth it having a second. Ruby is learning so much from Clara. I know, it's a bit weird, my 4 year old is learning from my 2 year old. `
I'm so happy for you!
Congrats to you! I can tell you from witnessing my younger son's experience having an older brother with autism, sometimes it's hard. But often it's fun, and they do enjoy each other's company, be that as it may. And they learn so much from each other. They really do. Best wishes.
ReplyDeleteCongratulations, this is truly a blessing from God. It may be a difficult road but I'm sure you have the strength and motherly love to walk it.
ReplyDeleteOfficailly...CONGRATULATIONS!! I think it is great. I also agree that the timing is perfect. There is nothing like a bundle of wonderment to lift your spirits as you head into the final stretch of autism. Hayden will be a great big brother and will defend his sister or brother from whatever lyes(cant remember the rule on lay, lie, lye...) ahead. "Genetics load the gun and vaccines pull the trigger". You would never pull the trigger again. This child will be born to a wiser mother than Hayden was. HAPPY HAPPY HAPPY. Love to you all. Kerri
ReplyDeleteThank you. :) I love that quote about genetics and the gun. It's so true.
ReplyDeleteCan't say what her life with autism will be like. My brother has severe CP. It was MY normal. I didn't grow up with a brother who was different. I grew up with my brother. She will grow up with her normal. She'll be as accepting of her brother as you teach her to be. Or as non-accepting as you teach her to be. I wouldn't have had my life be any other way.
ReplyDeleteWow, very well said. Thank you for the comment. :)
ReplyDeleteCrystal,
ReplyDeleteHere's the post you might be looking for.
http://generationsgone.wordpress.com/2009/02/01/happy-birthday/
It tells my brother's story.